About 3 years ago, my sister announced she was pregnant--we were ecstatic to say the least. We could not wait to meet this precious baby that was due October 31, 2009. They had a difficult time getting pregnant so this was music to our ears. My sister's pregnancy went well up until the 5th month.
She found a sore lump in her stomach which the doctors said was a fibroid tumor. The doctors planned to keep an eye on it throughout the rest of her pregnancy and she was introduced to a high-risk doctor just in case. My sister was advised to continue as she normally would, not to stress. Come September, my sister woke up in the middle of the night with excruciating pains in her stomach so my brother-in-law rushed her to the ER. Our fear was happening...she was going into labor too early. She was admitted into the hospital to stop the labor, which was successful.
On October 13, Jenny thought it would be another typical day at her routine doctor's visit...but it was not. They called the doctor in because her baby's heartrate was dropping. They quickly decided to do an emergency C-section. Late morning on October 13, 2009, we met Jared Camon Stowell. We thought finally the stress of the pregnancy is over and he is here. Little did we know, the stress was not over it was beginning...
Well we all thought we had everything figured out until about a month after Christmas, Camon was sick again. They took him to the doctor, where he coded 2 times because he could not breathe. This was the scariest day ever! God spared his life and we later found out he had RSV. While in the hospital, many more tests were done. This is when we came to find out Camon had Williams Syndrome. My family not only did not know what this syndrome was, but we had never even heard of it.
Williams Syndrome is caused by a deletion of a chromosome. It is associated with medical problems, learning disabilities, highly social personalities, and a love for music. They have distinct facial features such as a small upturned nose, wide mouth, full lips, and puffiness around the eyes. It affects 1 in 10,000 worldwide, so Camon is our special baby! He is the most loving baby! Camon has been such a blessing to our family, has brought our family closer in many ways. I truly believe God gives special babies to special parents. God never tells us it will be easy but we know it will all be rewarding! Camon is only 2 years old, has many issues, and still has many things to work through but I pray that he touches people's lives as he lives. I know he has touched my life and will forever hold a special place in my heart.
I wanted to tell this story because I hope this will spread the awareness of Williams Syndrome, even if in a small way.